2017 WAR ON SKIN CANCER EVENT
Join our friends at the OHSU Department of Dermatology for a day of melanoma education and awareness activities at South Waterfront in Portland! Activities include:
- 6th Annual NW Melanoma 5k Walk and Fun Run: AIM at Melanoma will be hosting a community walk to raise awareness of skin cancer. All proceeds will support the Melanoma Tissue Bank Consortium.
- Scar Project Gallery: See the stunning photography and moving stories of melanoma patients as captured by the research project of 3rd year dermatology resident Kelly Griffith-Bauer, MD. Learn about the people behind the scars, their journey and what they've learned about themselves, this disease and their hopes for the future.
- Melanoma Scientific Symposium: Short scientific talks by OHSU Knight Cancer Institute physicians and expert guest speakers will provide an overview of the latest advances in melanoma prevention, risk and genetics, local and systemic treatment.
- Skin cancer education and fun: Interact with one of many fun and educational booths, including sun safety education, research project updates, MoleMapper phone app, games, & more!
MELANOMA COMMUNITY RESEARCH FORUM
We made history! On Saturday, January 21, we brought together a community of over 200 healthcare professionals, melanoma survivors, family members and not-for-profit organizations for the unified purpose of melanoma teaching, discovery and community. Thanks to all of you who attended in person in Portland, Bend and Corvallis, and to our virtual attendees too! This day featured:
Total Participants: ~200
- Melanoma Professionals: 30 in person, 15+ online
- Community Participants: 80 in person, 60+ online
- Remote Location Participants: 15
- Patients who signed up to volunteer for SolSurvivors Oregon: 17
Keynote Presentation: The Current Direction of Melanoma Clinical Trials in the US
- Omid Hamid, MD, Director of the Melanoma Center and Phase I Immuno-Oncology Program, The Angeles Clinic and Research Institute
Q&A with Expert Panel (starting at 53:00 mins)
- Omid Hamid, MD, The Angeles Clinic and Research Institute
- Sancy Leachman, MD, PhD, Oregon Health & Science University
- Walter J. Urba, MD, PhD, Providence Cancer Center
- Carlo Bifulco, MD, Providence Cancer Cente
- Brendan Curti, MD, Providence Cancer Center
- Kristen Massimino, MD, Oregon Health & Science University
- Matthew Taylor, MD, Oregon Health & Science University
- Oliver Wisco, DO, Bend Memorial Clinic, Oregon Health & Science University
Community Forum Recording
Featuring SolSurvivors Oregon: Katie Wilkes, Robin Zimmerman, Jennifer Millar, Pam Beck
Oregon Health & Science University: Lisa Domenico, MBA, and Sancy Leachman, MD, PhD
Full photo gallery can be viewed HERE
Melanoma Community Research Forum
In November 2015, over 90 participants gathered in Portland, OR (with a remote viewing party in Bend), to learn about the latest research in melanoma prevention, diagnosis, and treatment. After the research presentations, attendees were invited to join small-group discussions facilitated by trained volunteers where they were asked questions such as: “If you had five minutes to sit down with a researcher, what would you want them to know about your experience with melanoma?”
Following the forum, members of the SolSurvivors Community Engagement Committee listened to recordings of the small group discussions and drafted summaries of themes. In early January, each committee member shared his or her summaries while our project coordinator wrote up themes on a virtual white board. Themes that came up more than once were highlighted, and we finished our meeting by discussing potential research questions that might address issues raised in the discussions.
Themes that we identified as issues of important for attendees of our research forum in November include:
- Frustration with lack of public knowledge about the seriousness of melanoma
- Lack of confidence in being able to detect a lethal lesion by self-exams or by primary care providers
- Lack of confidence in being able to detect recurrence
- Missing necessary information/resources/tools to make informed decisions regarding care
- Felt rushed during treatment
- Important to advocate for yourself, second opinions, second person at appointments with you
- Need more resources for emotional support and holistic wellness during and after treatment
- Sun protection and sun safety behavior- conflicting information and lack of general knowledge in the public
- Want to see more collaboration between health systems
To view a more detailed list of themes, download our Event Summary Report.
View a video recording from the forum.
What you said about the 2015 Melanoma Community Research Forum:
“This is truly one of the very best informative lectures, gatherings I've ever attended!”
“Thank you ALL for all your time today. I walk out of here a melanoma survivor today and know a lot more than when I walked in here. My voice does matter!!”
“Thank you for today. I feel like I'm part of a special team & together we'll beat back this disease.”
“Thank you! Really great info & community building. I appreciate your efforts so much!”