Upcoming Events

Melanoma Community Research Forum
January 2017

Save the date! SolSurvivors Oregon will be hosting a Melanoma Community Research Forum in Collaboration with AIM at Melanoma and the OHSU Department of Dermatology. Join us for a FREE forum about melanoma treatment advances, the future direction of clinical trials, and how we're responding to the needs of our community with a patient-centered research project. Plus, there will be plenty of opportunities to join the conversation and find out how you can get more involved!

Melanoma Community Research Forum
Saturday, Jan. 21, 2017
8:30 a.m. to 1 p.m.

Locations

Portland
Collaborative Life Sciences Building
2730 SW Moody Ave, Portland, OR 97201

Bend
Knight Cancer Institute Regional Outreach Office
963 SW Simpson Ave, Suite 100, Bend, OR 97702

Corvallis
Samaritan Pastega Regional Cancer Center
501 NW Elks Drive, Corvallis, OR 97330

Watch from your computer at home!
Join us for the live streaming of the event starting at 9:00 a.m. PST by clicking here.


Past Events

Melanoma Community Research Forum
november 2015

In November 2015, over 90 participants gathered in Portland, OR (with a remote viewing party in Bend), to learn about the latest research in melanoma prevention, diagnosis, and treatment. After the research presentations, attendees were invited to join small-group discussions facilitated by trained volunteers where they were asked questions such as: “If you had five minutes to sit down with a researcher, what would you want them to know about your experience with melanoma?”

Following the forum, members of the SolSurvivors Community Engagement Committee listened to recordings of the small group discussions and drafted summaries of themes. In early January, each committee member shared his or her summaries while our project coordinator wrote up themes on a virtual white board. Themes that came up more than once were highlighted, and we finished our meeting by discussing potential research questions that might address issues raised in the discussions.

Themes that we identified as issues of important for attendees of our research forum in November include:

  • Frustration with lack of public knowledge about the seriousness of melanoma
  • Lack of confidence in being able to detect a lethal lesion by self-exams or by primary care providers
  • Lack of confidence in being able to detect recurrence
  • Missing necessary information/resources/tools to make informed decisions regarding care
  • Felt rushed during treatment
  • Important to advocate for yourself, second opinions, second person at appointments with you
  • Need more resources for emotional support and holistic wellness during and after treatment
  • Sun protection and sun safety behavior- conflicting information and lack of general knowledge in the public
  • Want to see more collaboration between health systems

To view a more detailed list of themes, download our Event Summary Report.

View a video recording from the forum.

What you said about the 2015 Melanoma Community Research Forum:

“This is truly one of the very best informative lectures, gatherings I've ever attended!”
“Thank you ALL for all your time today. I walk out of here a melanoma survivor today and know a lot more than when I walked in here. My voice does matter!!”
“Thank you for today. I feel like I'm part of a special team & together we'll beat back this disease.”
“Thank you! Really great info & community building. I appreciate your efforts so much!”